Autism Out Loud: Life with a Child on the Spectrum, from Diagnosis to Young Adulthood

Autism Out Loud: Life with a Child on the Spectrum, from Diagnosis to Young Adulthood by Kate Swenson, Carrie Cariello, Adrian Wood

Autism feels like an incidental topic for this book. The authors talk about social media gathering and come across os mommy bloggers who happened to have kids with autism. They do go into some of their experiences, but the focus is on the mom, rather than the kid. The autistic child, the dad and the other siblings are bit players in this book of a mom's experience. The autistic child comes across as a challenge to "standard mommyhood" rather than a real person. The writers appear to be very outgoing go-getters who struggle significantly with a child that just does not adhere to social norms. This book will be useful for those ultra-social moms who have children with extreme autism. However, this only covers a small fraction of the cases out there.

One of the challenges with autism is that it is a single term applied to a large variety of conditions. The book does acknowledge that there are a number of co-existing conditions (such as ADHD and anxiety). Would it be better to split up autism into a number of unique diagnosis? Some kids have severe developmental and intellectual challenges. Others appear fine, but have social challenges. Lumping everything together just causes confusion. (Perhaps this is why it is becoming more common.) Autistic people tend to be more inward focussed. Even those that appear outwardly social are often less concerned about how others feel. These seems to be the opposite of the LGBT individuals who tend to be very outwardly focussed. They have pride parades and actively advocate for themselves. Autistic people rarely advocate for themselves. Are we missing out on an important part of culture? Were these people significant contributors in families before, but now shoved to the sidelines because they cannot adapt well to the challenges of ever-changing urban society?